People in control of their own health and care: The state of involvement
This content relates to the following topics:
Part of Working with patients, service users, carers and the public
This content relates to the following topics:
Part of Working with patients, service users, carers and the public
Comments
It is great to see this publication as it chimes with all the work I have done at practice level, regionally and nationally in the NHS. I have been advocating this for years and have shown that it works in British General Practice. However, trying to scale this approach has its challenges, particularly around the cultural change agenda as your policy implications point to. This led me, working with my colleagues and Microsoft, to develop a scalable solution called VitruCare which we have now deployed in several settings across the country and is providing evidence that engagement is possible at scale to patients enabling control and improving outcomes. Happy to discuss further with you if you wish.
Shahid
I also have spent 10years working as a volunteer for Cruse Bereavement Care with clients aged from 7 to 87. Without Input and the expert patient program i would not have achieved any of this, the investment in me has been repaid 10 fold. I wish that others could have this experience , be incontrol of their treatment and care and know that they are respected to know their conditions and be an equal in their own care.
We are trying to spread the word of the success of our group around the Newcastle Trust and to other providers of services to people living with HIV around the North East region although with no tangible success as yet.
I'm surprised and disappointed that this report has found so little patient participation around the country especially as it has been so successful for us.
I realise that it is easier to do this with people suffering from long term, chronic conditions that for those with acute, curable illnesses but it seems it is not happening even for those easier to reach groups let alone in GP practices. I have been a member of Patient Consultation Groups at two GP practices at one we had one meeting a year at at the other it's just an email every now and then.
Lots more to do NHS!
There is no individual within the Statutory Services responsible for informing the patient of their rights.
I am trying to understand how can the enormous amount of money being allocated to Mental Health is being used for the long term mentally ill, when there is no actual 'Monitoring' taking place.
I would suggest the CQC should incorporate. the Inspection of CPA Plans when Inspecting GP Practices has to be implemented.
The MONITOR is responsible for monitoring 'Integration'. There is no evidence that he is doing this.
The CQC would inform the 'MONITOR' when they discover that ongoing Assessments are not taking place as instructed by the DOH, in particular when very vulnerable patients are being neglected.
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