I’m heavily reliant on the health service due to complex needs because of complications arising from Spinal disease and damage caused by surgery, which then required surgery and surgery etc!
Whilst I agree that where possible treatment should be homebased for some; there also needs to be adequate support at home and when this is provided by local authorities, unfortunately it has been my experience that the additional help comes too late, or is not the right help. There is a huge gap between being an acute patient to discharge.
Patient flow and bed pressures caused by an aging population has a massive impact on what is available for the younger patient like myself.
Continuity of care is patchy untimely and causes stress on patients especially when one is told they are lucky to have minimal support in place as some have none.
When we become unwell because of the rush to discharge without the correct care package in place, after 14 days of hospital continued support in the community, more often than not a follow on care package from adult social care is not in place.
So back through the system the patient must go, a life full of appointments and waiting in outpatients. Leaves no life outside of appointments and is exhausting leaving no time to recover.
Ultimately this for me and many others I have met along the way Leads back to inpatient care and more life wasted.
What you see as progress I experience as a substandard ridged service, that puts a bandaid on but never gets around to treating the injury.
The real problem is not the young it is the elderly who’s needs are as complex as my own. Who too deserve better treatment but are left to cope alone or spend months in hospital waiting for support at home or in a home.
The more I experience the service, the more I realise that Domacilary care needs to be taken back by the NHS and not private companies who fall below the standard, who fail to provide on a regular basis and add to the problem by taking on staff who are not trained to the same standards as the NHS some of whom should not be in the job because they are uncaring and dishonest and not vetted enough, appraised enough and the companies they represent are in it for money and profit and put this over service delivery.
If you really want to cure the health service as a whole entity the simple solution is take the monetary market out of the NHS full stop.
Don’t outsource keep everything in house and this keeps it cheap because it costs the cost price!
Sure offer community services but take over ALL health and Social care.
This is a conversation that needs to be had, instead of talking about funding talk about killing the market within healthcare as a whole and in turn we will have a strong unified well led and run organisation, who can get back to doing what it should be doing instead of making it look good on paper and leaving us patients to struggle to cope with the aftermath of inadequate care and support.
After my recent experience I am beginning to believe in assisted suicide more and more!!!
In the olden days! we had convalescent homes. People who had had an operation, but recovering, would leave hospital and go for that extra care in to these homes and then discharged to their home.
A patient's observation.
Communication, even in this digital age, continues to be an issue with the NHS. The issues are within hospital departments, between primary and secondary care, between hospital and GP, between hospital and patient. The NHS is composed of many excellent people working in small bubbles and as a patient with a chronic illness, I would like to see those bubbles joined up into an integrated care system.
Prevent and prepare, recognition of when an illness or injury requires urgent care, provision of care and recovery are all implicit to Keith Willett's arguement. They are also the explicit domains of the Chain of Survival Behaviour (IFRC, 2016). Yet first aid education, which spans these domains and builds tbe resilience of communities and individuals continues to be ignored as a tool by the NHS and public health. It's not mentioned in 5 Year Forward or in any Health and Wellbeing Board Strategies. Of course it might only be part of the solution, but does that render it worth ignoring to such an extent?