The consequences of this are you don't visit that nurse again, you doubt yourself and might even be reluctant to bring information to a, so called, "professional".
Keep up the good work.
SCAD survivors are a closed Facebook group, made up of people who have survived a rare form of heart disease call Spontaneous Coronary Artery Dissection (SCAD). This condition is rare and little is written about it academically and nothing useful is available to the people who have had one Because of this, a woman in America started a Facebook page looking for others to help her, share her experience, ask about treatments, management and long-term prospect etc. Amazingly in 3 years the group has grown to 578 people across the globe. They have all had at least one SCAD some have had more.
A number of this group are from the UK. Together we have persuaded a Cardiologist to undertake research into SCAD with the hope of finding answers to some of our questions and obtaining informed views of long-term management. A SCAD is not caused by "normal heart disease related lifestyle issues" such as smoking, weight, exercise, cholesterol etc. To date cardiologists can only guess as to why it happens to seemingly healthy people (often young women postpartum). As individuals we wanted answers and were frustrated by the lack of any. Together through social media we have a voice and influence and with funding from the British Heart Foundation we now have hope.
Governments have totally failed to implement the Select Committee recc of 2001 for people with LTC and head injury. Mental health services are being cut whilst guff emits from DH about choice of service for users. The word for these policy initiatives is simple: cant.
1. What costs would be associated with using the privately licenced PAM?
2. What alternative measures are available?
I can see how this might challenge the medical model, of we do 'this' to you, but I wonder about the possibility of such a measure, or future version X, being used for nefarious purposes. The response then might be, as bartleby would pit it, "i would prefer not to".
Yes there is a charge for the licence. This can be obtained from Insignia Health website.