In our experience, the most powerful thing about the stories mother tell is their expertise and their willingness to work with staff when there are problems - if they are treated with respect and honesty - see www.patientvoices.org.uk/naoneo.htm for example.
Thanks Lillie. There is such a wealth of expertise out there in the lived experience of year-in, year-out feedback collection/review/co-design in MSLCs - as well as the linked governance aspect (see NICE CG190 recommendation 1.1.17). Multidisciplinary working as equals, lay and clinicians and commissioners together, is the key (and a model that can be seen as challenging sometimes - a challenge that NICE, for example, welcomes, in having a similar working group model.) MSLCs predate the current 'fashion' for co-design, and suffer perhaps from 'not being new' in an environment that favours 'innovation' - whereas maybe long term, sustained and sustainable effort is the real key. It is a real shame that the commissioning bit of Department of Health was not aware of the history - that service user reps can be experts too in matters of involvement and service change: it is a radical old idea. http://ow.ly/2thF3058Ts0
Catherine, thank you for sharing the link to your report. Our report describes the approaches to feedback (some of which involve MSLCs) that we heard about when we spoke to providers, but we’re aware that there are many other good examples. The scope of the commission from the Department of Health didn’t include discussions with user representatives, so unfortunately we couldn’t include this perspective in the report.
Didn't look as though you had approached and talked to any of the service user groups on or the lay chairs of the very many active NHS multidisciplinary MSLC committees? If so, an odd omission. Try searching #mslc on Twitter. Did you talk directly to any service users at all? The national forum of MSLC service user reps could have helped you with that - to contact non-reps for input, as well as our network. Reading the report, it seems a bit disconnected from what is happening in maternity, always allowing for the fact that knowledge within trusts and CCGs of what is going on locally in maternity feedback sharing can be patchy. You might get a flavour of what is out there from the Reading MSLC filmed report - link on my blog www.birthandbiology.wordpress.com