I'm sorry to hear about your frustrations regarding the care you've received. If you'd like further support with this, it might be worth contacting Allergy UK. They provide help and support to those with all allergies and have a dedicated hotline: https://www.allergyuk.org/get-help
There are also a number of organisations who support patients which it might be worth getting in touch with. These are the Patients Association (https://www.patients-association.org.uk/) and Healthwatch (http://www.healthwatch.co.uk/).
I hope the above information is useful to you.
i have a severe allergy to fragrance confirmed by a hospital skin patch test over ten years ago, this prevents me from going out my own house as im allergic to everyone as most people wear fragrances or its in every public place /toilet etc, the nhs refuse to send me for fragrance desensitisation injections to cure this allergy instead they waste nhs money sending me to counselling or prescribing me anti depressants, sleeping tablets etc when the real medical problem isnt being solved, the money wasted on counselling anti depressants etc would be better used sending me for desensitasation, nhs waste money and spend more in the long run keeping me sick and unable to work or go out, its ridiculous stupidity.
Because they work for system not patient
Whilst this may be a useful protocol for those with a high risk of recent exposure it has been handled without a lack of judgement and clinical reasoning and risk management. The consequences of agreeing to the protocol were not explained, nor was the likelihood of equivocal results (high) and the waste of resources, manpower and my time away from clinical work. This seems to me a classic example of unthinking wastefulness and even worse reducing the already pressured blood donation service and further misuse of exposure to antibiotics.
Now I have to find the energy and time to challenge this so improvements can be made and wastefulness and adverse consequences for others can be recognised. What happened to clinical governance?
I hope education is the answer to reduce over use and reduce wasted consultation.
The problem is not complex but we must standardise primary care physicians and emergency care providers. Once they make an error, the damage is done and so it will be difficult for other doctors to clean the mess.
I raised concern in 2003 and produced documents to prove using nurses as the gatekeepers is not in the interest of our profession or the humanity. Now I do not know weather to cry or laugh at all the disasters that has brought us shame.
When challenged the response is invariable I am the Doctor and therefore you will see. This results in allocation and assessment for the individual of which currently about 27% require no further input and 18% are referred to local voluntary agencies or support. This 45% of referrals which do not require NHS support could and should have been directed at the Primary Care level.
I am aware of the time pressures on GP's to see a large number of individuals in a short space of time however the result is a label of mental health problems for individuals that just need local support.
There is clearly a role for further training for GP colleagues in Mental Health and also the impact that a Mental Health referral and potentially a diagnosis can and does have on an individual's life and family.
Do the math... Needs more than a discussion amongst a few doctors.
In my field of work normal healthy babies who cry normally whose mothers are finding it difficult to cope, get labelled as 'Lactose Intolerance' or 'Milk Intolerance' of some sort and/or G/O Reflux and are prescribed a variety of special baby milks and reflux medications, they get referred to Paediatric Clinics where it is hard to convince the mothers that the baby is normal and things will settle without any medical intervention. I, one of the most experienced doctors, spend 80% of my work time doing clinics looking after ‘worried wells’ trying to manage over-diagnosis in Primary Care at the same time juniors are doing over-investigations and over-diagnosis on the acute front. This practice is so embedded in NHS culture that it is hard to convince colleagues that this seems wrong way of working.
Once you do the tests and scans for trivial symptoms without clinical need you give impression to parent that their child needed scan/tests for this symptom; this creates unrealistic expectations amongst other parents and the cycle continues. Doing tests in NHS is much easier than not doing as over-investigations is so common that it has become the norm! The reasons are complex and solution is not simple but the profession has some responsibility towards it too.