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Can Deaf and disabled people’s organisations help shape health and care services in the UK?
How can trust be rebuilt between disabled people and health care providers, in order to ensure that disabled people receive the appropriate health and care services they require? Manishta Sunnia discusses the importance of collaborative working between health and care partnerships and Deaf and disabled people’s organisations.
Comments
You have highlighted a very important issue. The system was too focussed on buildings for a long time. We are, it seems, getting better by focussing on 'structures' rather than buidlings now. I do hope we make the leap to 'person centred care' and 'health' rather than treatment soon.
The least used resources in healthcare are:
The person or should I say the 'patient' (as we like to call him/her)
Technology.
Minesh
'duty of care legal definition of duty of care'
a requirement that a person act toward others and the public with watchfulness, attention, caution and prudence that a reasonable person in the circumstances would if a person's actions do not meet this standard of care then the acts are considered negligent and any damages resulting may be claimed in a lawsuit for negligence'.
The Guardian article of the 18th February 2015 should be read, and then understand why the paragraph above was included in my response.
I am not surprised that young and old alike forget what has been said to them and their medications forgotten for this very good reason. Some specialists/doctors tell them little - they are often found head in a computer screen writing up notes rather than communicating.
There will always be the exceptions of course.
When the roles are reversed and the doctor becomes the patient there is often a little more understanding.
You could not be more spot on. I fully agree that NHS has created a dependency in the public. I can write a book on it from my day to day hands on experience with patients. Something as simple as, when seeing any medical case in grey area, when and if I ask the patient what " would you like" from options x, y, z? The reply I get is" you are the doctor"
In all the reformations, the most important and fundamental step of self responsibility, self care and patient engagement is missing. Our patients do not even know their medications, I am talking of the simplest ones. When I ask, " so what did the specialist tell you"? The reply I get is,"oh, I do not know"?
What a very sad reflection all this has on our leaders and senior managers. When will someone have what it takes to grab the problem by the scruff of the neck and do the job they are paid to do for us and do it well?
If our 'system' is the envy of the world, God help the others, albeit there are some pockets of great expertise and dedication.
Gone should be the days of group hugs and persuasion, lets really give the public what is required, what we pay them to do and indeed to show that they really do care.
This isn't just investment in monetary terms, this is an investment of time and energy with support needed from many partners including the third sector and housing federations, both of whom play a vital role.
My experience of working across the north of England as a lead for the wider personalisation agenda and Improved patient experience has taught me that national policy and rehetoric has a long journey yet to travel in activating local commissioners to make radical and difficult decisions in turning the tide. I read a quite recently and apologise in advance for not remembering the author, but I quote 'professionals need to get down from their pedestals and patients need to get up from their needs'. I acknowledge that this does not apply to all as there are some fantastic examples of change emerging, we just need to harness and spread these examples and keep the conversation going ... LOUD & CLEAR.
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