Based in Liverpool, the Huntington’s Disease Association (HDA) is a national organisation offering help, support and advice to those affected by the disease, including children and young people growing up with Huntington’s Disease in their family.
Huntington’s Disease is a hereditary disorder of the central nervous system. Its effect on families can be devastating and cuts across generations.
The Huntington’s Disease Association's network of Regional Care Advisors (RCAs) are all qualified health or social care professionals, and are dedicated to helping people manage their symptoms positively. They are the main point of contact for families, providing a 24-hour telephone service, visiting them in their homes and accompanying them to clinic appointments.
What the judges thought
'HDA’s innovative approach has made it a centre of excellence and an example for other charitable organisations. It is very strong, well organised and is extremely well connected with its potential client group and those who need to be influenced nationally and locally.'
More from the 2013 GSK IMPACT Award winners
With their unprecedented love, help and support we overcame the dark cloud that had descended over us and tearing us apart.
The HDA ensured we got all the support we needed and were entitled to as we had no idea what to do, where to go or who to turn to.
For their invaluable and indefatigable support, we will be forever grateful.