Patient voice and power in the new NHS

Date: 

About this event

This conference looked at the voices of patients and lay people in the NHS and explored the ways in which patients can add value to the health and social care system.

Catch up with the highlights from this conference

David Gilbert: Moving towards a model of patient leadership

David Gilbert, Co-Director, Centre for Patient Leadership, explains why we must move towards a model of patient-influenced change and away from the current model of 'them and us' that exists between professionals and patients.

Listen to David's presentation

Dominic Makuvachuma-Walker: The value of patient leadership in the NHS

Dominic Makuvachuma-Walker, a patient active in the mental health survival movement, talks about his experiences going through treatment for both mental and physical illness and how valuable patient leaders can be in the care of other patients.

Listen to Dominic's presentation

Mike Cooke: Hearing the patient voice and responding: A view from both sides

Mike Cooke thumb

Mike Cooke
Mike Cooke, Chief Executive of Nottinghamshire Healthcare NHS Trust, drew on his experience as a leader in the NHS and as a service user, stressing the importance of openness and the involvement of patients in their care and in health care research.

Watch Mike's slideshow

Marc Bush: Making better use of patients' experiences

Marc Bush

Marc Bush
Dr Marc Bush, Director of Policy and Intelligence at Healthwatch England, spoke our patient voice conference, exploring the role of Healthwatch England, and the importance of involving patients in the design of services in their areas.

Listen to Marc's presentation

Harry Cayton: Developing patient leaders to drive change

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Harry Cayton, Chief Executive of the Professional Standards Authority, introduced seven different types of leader and stressed the importance of patient leaders finding these characteristics in themselves to drive change in the NHS.

Listen to Harry's presentation

Tweets from the event

See the conversations that were happening during the event on Twitter

Programme

Session one: Where is the patient leader?

Welcome and introduction

  • What do we mean by patient leadership?
    Mark Doughty and David Gilbert, Co-directors, Centre for Patient Leadership
  • Giving the patient voice the power
    Dominic Makuvachuma-Walker, Engagement Manager, Mind
    Brenda Murray, Carer Ambassador, Carers UK
  • A view from both sides
    Mike Cooke, Chief Executive, Nottinghamshire Healthcare NHS Trust

Session two: Breakout sessions

  • Patient leader taster session
    Mark Doughty and David Gilbert, Co-directors, Centre for Patient Leadership
  • Community health champions
    Alyson McGregor, Director, Altogether Better
  • Co-production of services
    David Singer, Transformation Projects Lead, Lambeth Living Well Collaborative
  • Local Healthwatch

Session three: Breakout sessions

  • Patient leader taster session
    Mark Doughty and David Gilbert, Co-directors, Centre for Patient Leadership
  • Community health champions
    Alyson McGregor, Director, Altogether Better
  • Co-production of services
    David Singer, Transformation Projects Lead, Lambeth Living Well Collaborative
  • Local Healthwatch

Session four: Where do patients and lay leaders fit into the new system?

  • Healthwatch – ensuring the voice of the patient is heard
    Dr Marc Bush, Director of Policy and Intelligence, Healthwatch England
  • Patient leaders might, just, change everything
    Harry Cayton, Chief Executive, Professional Standards Authority

Panel session – How best can patients influence and effect change?

Panelists include:

  • Jonathon Hope, person-centred change consultant
  • Annie Cooper, Clinical Informatics Advisor (Nursing), NHS England
  • Debbie Sorkin, Chief Executive, National Skills Academy for Social Care

Speakers

Dr Marc Bush

Director of Policy and Intelligence, Healthwatch England

Marc Bush is the Director of Policy and Intelligence at Healthwatch England, joining the organisation from the disability charity Scope, where he was the Head of Research and Public Policy. Marc has previously worked on welfare, health and social care reform, acting as a specialist and adviser for statutory bodies, parliamentarians, government departments, local authorities and charities. He has an academic background in research with young people on the autistic spectrum.

Harry Cayton OBE

Chief Executive, Professional Standards Authority for Health and Social Care

Harry Cayton OBE is Chief Executive of the Professional Standards Authority for Health and Social Care, the statutory body which oversees the regulation and registration of health and care professions in the United Kingdom. From 2001–07 he was National Director for Patients and the Public at the Department of Health following 20 years in the voluntary sector, latterly as chief executive of the Alzheimer’s Society. He is a member of the World Economic Forum Council on Digital Health, chair of the Patient and Public Involvement Advisory Group of the Commission on Human Medicines, a trustee of Comic Relief, and adviser to several charities.

Mike Cooke

Chief Executive, Nottinghamshire Healthcare NHS Trust

Mike Cook is an experienced, innovative chief executive who joined Nottinghamshire Healthcare NHS Trust in June 2007. He has worked at many levels within the acute hospital, mental health and primary care sectors. Mike has leadership skills coupled with a track record of developments in the NHS and local public sector.

Mike is an honorary professor in health care, innovation and learning at Nottingham University Business School. He is on the National Institute for Health Research Advisory Board, and chairs both the local Nottinghamshire, Derbyshire and Lincolnshire Collaboration in Leading Applied Research [CLAHRC] and the new East Midlands CLAHRC. He also chairs the Trent Comprehensive Local Research Network Board and is a lecturer at the Nottingham Recovery Education Centre.

Mike was awarded a CBE for services to mental health care in the 2011. Under Mike’s leadership Nottinghamshire Healthcare NHS Trust has developed a range of new services including improved access to psychological therapies across the City of Nottingham, Nottinghamshire and Bassetlaw; improved offender health services in 13 prisons and a Transforming Community Services programme, which came into effect on 1 April 2011.

Anne Cooper

Clinical Informatics Adviser (Nursing), NHS England

Anne Cooper is Clinical Informatics Adviser (Nursing) at NHS England. She is a nurse who also has type 1 diabetes. Anne has a passion for how information supports care from both the professional and citizen’s perspective and sees information as a key dimension to empowering patients. Anne has worked as a clinician in informatics-related work for more than 10 years including working on the Summary Care Record and NHS Choices.  Anne is also active on social media in both professional and patient communities.
Anne can be found on Twitter @anniecoops and blogs both in a leadership capacity and as a person with diabetes at www.anniecoops.com

Mark Doughty

Co-Director, Centre for Patient Leadership

Mark Doughty's professional background is in learning and development with a particular focus on supporting people with an illness, injury and disability to achieve their leadership potential.

The Centre for Patient Leadership (CPL) provides learning and support for patient leaders – patients, services users and carers who want to change how the NHS works. CPL seeks also to promote patient leadership as a social movement for change. Its work was shortlisted in this year's Guardian Healthcare Awards. See www.cpl-uk.com

David Gilbert

Co-Director, Centre for Patient Leadership

David Gilbert is a former mental health service user and has 25 years' experience in the field of patient and public engagement at local, national and international level.

The Centre for Patient Leadership (CPL) provides learning and support for patient leaders – patients, services users and carers who want to change how the NHS works. CPL seeks also to promote patient leadership as a social movement for change. Its work was shortlisted in this year's Guardian Healthcare Awards. See www.cpl-uk.com

Jonathon Hope

Person-centred change consultant

Jonathon has a 19-year background in finance. For more than 30 years he has had kidney failure and over this period has experienced virtually every step in the complex kidney patient pathway, including 14 years on dialysis. At this time Jonathon has a successful transplant – his fourth.

He currently runs a health care consultancy company called Jonathon Hope Ltd and has written, spoken and advised on a wide range of projects and subjects including: palliative care, patient-centred innovation, patient involvement and leadership, renal care, long-term conditions and patient safety.

Jonathon's main aim as a person-centred change consultant is to help ensure that all organisations who are carrying out 'modernisation' or QIPP (Quality, Innovation, Productivity and Prevention) work have the governance, strategy and overall expertise in place to ensure that the patient voice and experience really drives their proposals and outcomes.

In 2012 Jonathon was awarded an MBE for his work in improving renal services.

Dominic Makuvachuma-Walker

Patient

Dominic Walker has been active in the mental health system survivor movement since 1994, with a special interest in race equality and supporting the development of leadership roles for people with direct experience of using health services.

His recent experience of major surgery gave him insight into the disparity of esteem between physical health and mental health services in the UK service provision.

Alison McGregor

Director, Althogether Better

Alyson McGregor is Director of Altogether Better. Alyson's interest is in unlocking the potential within communities to live better lives and she believes a sustainable solution to the challenges faced by the NHS lies in improving the quality of our relationship with communities. She has extensive experience of working to reduce health inequalities in public, private and voluntary sectors and has more than nine years' board-level experience.

Altogether Better has developed an award-winning evidence-based approach, creating an astonishing resource of more than 18,000 volunteer community health champions who, with training and support, draw on their own assets and resources to improve health and service outcomes.

Working with a passion to create new relationships between citizens and services, Alyson is working with 13 clinical commissioning groups and their GP practices to transform services by effectively engaging and involving people in the co-design, co-production and co-commissioning of health services.

Brenda Murray

Patient

Brenda Murray is currently a carer for her mother, who is recovering from a stroke and has diabetes and a hearing impediment. Brenda is a Carer Ambassador for Carers UK, she mostly works with general practitioners (GPs) within her local area to raise awareness relating to carers, but also works with building and maintaining protocols in surgeries to support carers. Brenda originally comes from a criminal justice background and is a qualified probation officer but feels she has been able to transfer many of her skills to the health sector.

Brenda has been a Carer Ambassador for approximately 18 months and has achieved some good outcomes. She is currently a member of both her local Carers Partnership Board and GP Patient Participation Group. She completed the six-month Patient Leader programme in July 2013.

David Singer

Transformation Projects Lead, Lambeth Living Well Collaborative

David Singer is the Transformation Projects Lead for mental health services at Lambeth Council. Recently David has been promoting change and transformation through the local co-production platform know as the Lambeth Living Well Collaborative. Through this ambitious collaboration of multi-sector organisations and individuals working in partnership with people who use services and their carers, David has been applying co-design methods to drive radical difference in the way services are conceived, designed, developed and delivered.
  
David holds a master's degree in design for development specialising in design for co-production and sustainable change building on his past experiences as a registered social worker, working in the field of mental health.

Debbie Sorkin

Chief Executive, National Skills Academy for Social Care

Debbie Sorkin is Chief Executive of the National Skills Academy for Social Care. The Skills Academy aims to strengthen leadership at all levels of the social care workforce and beyond, among people using care and support services, their carers, and the communities in which they live and work. To that end, the Academy runs leadership development programmes; recognises and badges high-quality training provision through its unique Endorsement Framework and engages with employers, managers and other staff, training providers, local authorities, support services and national charities through its membership scheme. The Academy is one of the largest membership organisations in social care, reaching more than 6,000 services and individuals across the country; across all client groups; and across the public, private and not-for-profit sectors. The Academy has a particular focus on championing registered managers in their position as lead professionals in care settings.

Alongside her work at the Skills Academy, Debbie also has extensive non-executive experience in adult social care, including roles as vice-chair of Papworth Trust, a leading UK service provider for people with disabilities, and chair of East Living, the care and support arm of East Thames Housing Group.