Leading change in dementia diagnosis and support

Actions to inform future national strategy
Date: 
Time: 
9.00am–5.00pm
Venue: 
The King's Fund, London W1G 0AN
Event type: 
One-day conference

Highlights

With talks from a variety of speakers, this conference brought together professionals and experts by experience in health, social care, housing and the community to reflect on progress to date, learn from current examples and find new ways of delivering transformational change in dementia diagnosis, care and support.

Catch up on the lively Twitter debate from the conference with our Storify feed.

Frank Arrojo: Caring for a loved one with dementia

Graham Browne: Living with dementia

Andrea Sutcliffe: Findings of the review into quality of care for people living with dementia

Programme

Session one: Opening plenary

Welcome and introduction

Professor Chris Ham, Chief Executive, The King's Fund

Towards a New National Strategy: Ambitions for Dementia Services Going Forward

  • Outlining the ambition: in 2015 two-thirds of the estimated number of people with dementia will have a diagnosis and post-diagnostic support
  • Examing aspects of dementia care and how NHS England is supporting local areas to plan and deliver services 

Professor Alistair Burns, National Clinical Director for Dementia, NHS England and Professor of Old Age Psychiatry, University of Manchester

The new Carers Involvement Network for carers of people with dementia

  • Listening to the experts - family carers

Frank Arrojo, Expert by Experience
Frank cared for his late mum, who lived with vascular dementia, for some 20 years
Jean Tottie, Chair of the Life Story Network and Former Carer
Jean is leading on the new Involvement Network for Carers

Opportunity for change: Actions to lead improvements

  • Addressing the urgent need for a specific dementia strategy with clear lines of accountability
  • Providing people with dementia and family carers with access to good quality, integrated care that is affordable
  • Update on progress towards building dementia-friendly communities
  • Supporting people with dementia to live independently in their own homes

Jeremy Hughes, Chief Executive, Alzheimer's Society

Cracks in the pathway: findings of the Review into the quality of care people living with dementia receive as they moved between care homes and acute hospitals

  • Achieving good dementia care through comprehensive assessments that support personalised care
  • Looking at the actions CQC are taking

Andrea Sutcliffe, Chief Inspector of Adult Social Care, Care Quality Commission

My perspective on dementia services and care, as a person who lives with dementia

Graham Browne, Living with Dementia Ambassador, Alzheimer's Society

Session two: Breakouts

Breakout A: Dementia diagnosis

Welcome and introduction

Professor Sube Banerjee MBE, Professor of Dementia and Associate Dean, Brighton & Sussex Medical School and Honorary Consultant Psychiatrist, Sussex Partnership NHS Foundation Trust

The top ten reasons to make a timely diagnosis of dementia

  • Improving the numbers of people able to access a timely diagnosis of dementia and appropriate care.

Dr Sunil Gupta, GP, and Clinical Advisor for Dementia for Midlands and East
Dr Gupta is one of seven new ambassadors appointed by NHS England, October 2014, to begin spreading the word about the importance of diagnosing more patients with dementia in a bid to help improve patients' and their carers' quality of life.

Dementia diagnosis targets: a problem of scale?

  • Assessing the risks associated with applying financial incentives for GPs to raise diagnosis rates

Dr Martin Brunet, GP, Programme Director, Guildford GP Training Scheme

Dementia diagnosis- the role of memory services

  • What is the memory service?
  • What should it do?
  • What is their place in the wider network of health and social care services?
Professor Sube Banerjee MBE, Professor of Dementia and Associate Dean, Brighton & Sussex Medical School and Honorary Consultant Psychiatrist, Sussex Partnership NHS Foundation Trust

Breakout B: Delivering high quality services in care settings

Welcome and introduction

Rachel Thompson, Professional and Practice Development Lead for Admiral Nursing, Dementia UK

Dementia screening: specialised multi-disciplinary support 

  • Developing a hospital based Proactive Elderly Care Team (PECT) whose main role is to screen patients for dementia and delirium
  • Reducing average length of stay and readmissions
  • Working with GPs and commissioners to expand the team into the community

Peter McCann, Consultant Physician, Lancashire Teaching Hospitals NHS Trust

Impact of an integrated rapid response psychiatric liaison team: looking at the RAID model

  • Establishing a team of specialist psychiatrists, social workers and mental health nurses
  • Providing regular training for acute hospital staff in the diagnosis of delirium, depression and dementia
  • Stress the value of training to acute hospital staff
  • Wider benefits for the hospital: cost savings, improved waiting times and reduced repeat admissions

Professor George Tadros, Consultant in Old Age Liaison Psychiatry and Clinical Lead, Rapid Assessment, Interface and Discharge (RAID) Service, Birmingham & Solihull Mental Health Trust

Delivering improvements through involved and supported carers

  • Ensuring a culture that always involves and engages carers as partners is in place, where carers are actively welcomed and invited into this role and their changing needs are actively addressed
  • Using carers’ surveys to encourage feedback and communication between family, carers, and ward staff

Dr Chooi Lee, Consultant Geriatrician, Kingston Hospital
Kingston Hospital was awarded the HSJ/Nursing Times Patient Safety and Care Award 2014 for Dementia Care

Dr Lee will be joined by Jan Ives, a valued carer, who has been instrumental in leading the improvements across the hospital

Breakout C: Implementing care networks

Welcome and introduction

Looking at the key findings of the National Audit of Dementia

  • Spotlight on hospital action plans: improving discharge planning and pathways
  • Methodology and timetable for the next audit (commencing January 2015)

Chloë Hood, Programme Manager, National Audit of Dementia and Quality Mark for Elder Friendly Hospital Wards, Royal College of Psychiatrists

The Dementia 'Golden Ticket' - An Emerging New Model of Care

  • Re-designing the Dementia Pathway to develop an assurance framework for high quality, responsive services, at the point of diagnosis
  • Initiating ‘The Golden Ticket’ for Patients and Carers to facilitate access to holistic care and support services, for the whole journey with Dementia

Dr Elizabeth Gill, Clinical Chair, High Weald Lewes Havens Clinical Commissioning Group
Dr Emma Costello, Dementia Care Lead, High Weald Lewes Havens Clinical Commissioning Group
Kim Grosvenor, Dementia Transformation Lead, High Weald Lewes Havens Clinical Commissioning Group

Your community matters

  • Developing a networked approach - care and support from multiple professionals and clinicians across the whole care system
  • The role of housing and transport as vital elements of community support
  • Reducing social isolation and loneliness which many people with dementia and carers experience

Ruth Eley, Vice Chair, Life Story Network and Chair, Liverpool Dementia Action Alliance

Session three: Breakouts

Breakout A: Dementia friendly communities

Welcome and introduction

George McNamara, Head of Policy and Public Affairs, Alzheimer’s Society

Building a dementia friendly Bradford – one community at a time

  • Our experiences in Bradford
  • Outcomes and learning

Cathy Henwood, Dementia Friendly Communities Coordinator, Alzheimer’s Society

Luton as a dementia friendly community – how we are doing it!

  • Launching Luton’s Dementia Action Alliance and keeping up the momentum
  • Our next steps to widen the network

Kimberly Radford, Commissioning Manager, Luton Borough Council

Breakout B: Dementia friendly design

Welcome and introduction

Sarah Waller CBE, Programme Director, Enhancing the Healing Environment, The King’s Fund

Improving the environment of care for people with dementia

  • Main findings from the programme evaluation
  • Development of the Health Building Note

Dr. Federica Pascale and Efthimia Pantzartzis, Research Associates, Loughborough University 

The transformation of Beaconsfield East Ward

  • Design and consultation
  • Outcomes and impact

Vanessa Saunders, Lead Nurse for Quality Improvement, Hillingdon Hospital NHS Foundation Trust

Breakout C: End of life care

Welcome and introduction

Professor Keri Thomas, National Clinical Lead, Gold Standards Framework (GSF) Centre CIC for End of Life Care and Hon. Professor End of Life Care, University of Birmingham

An introduction to the GSF Care Homes and Dementia Care Training Programmes

Maggie Stobart Rowlands, GSF Lead Nurse & Programme Manager, GSF Centre

Improving the quality of care, proactive planning and working with GPs

Anita Astle MBE, Manager and Lead Nurse of the Care Home Project, Wren Hall Nursing Home

Let’s talk about death

  • Opening the conversation
  • Planning for a good death

Hayley Rowson de Vares, Residential Manager, Sherdley Court

Session four: Closing plenary

Welcome back

Richard Humphries, Assistant Director of Policy, The King's Fund

Making a difference in Dementia: nursing vision and strategy

  • Update on progress made in delivering the strategy one year on
  • Examining the ongoing work at the RCN on dementia care
  • Raising the profile of the wider nursing contribution to dementia care

Dawne Garrett, Professional Lead for Older People and Dementia, Royal College of Nursing

Panel discussion: shaping a new national strategy

George McNamara, Head of Policy and Public Affairs, Alzheimer’s Society in conversation with:

  • James Cross, Area Manager and National Lead for Dementia and Mental Health, Skills for Care
  • Jean Tottie, Chair of the Life Story Network and Former Carer
  • Gary Rycroft, Solicitor and Partner, Joseph A. Jones & Co Solicitors and Member, The Law Society Wills & Equity Committee
  • Beth Britton, Expert by Experience
    Beth’s father had vascular dementia for approximately the last 19 years of his life. She is now one of the U.K.'s leading campaigners on dementia and a Consultant, Writer and Blogger
    .
  • Dr Shibley Rahman, Academic in Policy of Living Well with Dementia
  • Chris Roberts, Expert by Experience. Chris is in his early 50s and is living with young onset vascular dementia. Chris is a dementia friend champion and writes a regular blog to raise awareness.

Sporting Memories Network – health promotion and peer support through sport

  • Promoting the well-being of people living with dementia through user-led activities and partnerships
  • How a lifetime of sporting memories can increase socialisation, communication, friendship and exercise

Chris Wilkins and Tony Jameson Allen, Directors, Sporting Memories Network Winner of the Best National Initiative Award at Alzheimer's Society National Dementia Friendly Awards 2014

Closing comments and summary

Richard Humphries, Assistant Director of Policy, The King’s Fund




Speakers

Professor Alistair Burns

National Clinical Director for Dementia, NHS England and Professor of Old Age Psychiatry, University of Manchester

Professor Chris Ham

Chief Executive, The King's Fund

Read Chris' biography

Jeremy Hughes

Chief Executive, Alzheimer's Society

Chris Roberts

Expert by Experience

Chris is in his early 50s and is living with young onset vascular dementia. Chris is a dementia friend champion and writes a regular blog to raise awareness.

Graham Browne

Living with Dementia Ambassador, Alzheimer's Society

Professor Sube Banerjee MBE

Professor of Dementia and Associate Dean, Brighton & Sussex Medical School and Honorary Consultant Psychiatrist, Sussex Partnership NHS Foundation Trust

Professor George Tadros

Consultant in Old Age Liaison Psychiatry and Clinical Lead, Rapid Assessment, Interface and Discharge (RAID) Service, Birmingham & Solihull Mental Health Trust

Dr Sunil Gupta

GP, and Clinical Advisor for Dementia for Midlands and East

Sarah Waller CBE

Programme Director, Enhancing the Healing Environment, The King’s Fund

Read Sarah's biography

Andrea Sutcliffe

Chief Inspector of Adult Social Care, Care Quality Commission

Frank Arrojo

Expert by Experience

Jean Tottie

Chair, Life Story Network and former Carer

Dr Shibley Rahman

Academic in Policy of Living Well with Dementia

Peter McCann

Consultant Physician, Lancashire Teaching Hospitals NHS Trust

Chloë Hood

Programme Manager, National Audit of Dementia and Quality Mark for Elder Friendly Hospital Wards, Royal College of Psychiatrists

Professor George Tadros

Consultant in Old Age Liaison Psychiatry and Clinical Lead, Rapid Assessment, Interface and Discharge (RAID) Service, Birmingham & Solihull Mental Health Trust

Chooi Lee

Consultant Geriatrician, Kingston Hospital

Kingston Hospital was awarded the HSJ/Nursing Times Patient Safety and Care Award 2014 for Dementia Care

Jan Ives

Carer

Dawne Garrett

Professional Lead for Older People and Dementia, Royal College of Nursing

Dr Elizabeth Gill

Clinical Chair, High Weald Lewes Havens Clinical Commissioning Group

Dr Emma Costello

Dementia Care Lead, High Weald Lewes Havens Clinical Commissioning Group

Gary Rycroft

Solicitor and Partner, Joseph A. Jones & Co Solicitors and Member, The Law Society Wills & Equity Committee

George McNamara

Head of Policy and Public Affairs, Alzheimer’s Society

Cathy Henwood

Dementia Friendly Communities Coordinator, Alzheimer’s Society

Kimberly Radford

Commissioning Manager, Luton Borough Council

Vanessa Saunders

Lead Nurse for Quality Improvement, Hillingdon Hospital NHS Foundation Trust

Professor Keri Thomas

National Clinical Lead, Gold Standards Framework (GSF) Centre CIC for End of Life Care and Hon. Professor End of Life Care, University of Birmingham

Maggie Stobart Rowlands

GSF Lead Nurse & Programme Manager, GSF Centre

Anita Astle MBE

Manager and Lead Nurse of the Care Home Project, Wren Hall Nursing Home

Hayley Rowson de Vares

Residential Manager, Sherdley Court

James Cross

Area Manager and National Lead for Dementia and Mental Health, Skills for Care

Beth Britton

Expert by Experience

Chris Wilkins and Tony Jameson Allen

Directors, Sporting Memories Network

Richard Humphries

Assistant Director of Policy, The King's Fund

Read Richard's biography

Ruth Eley

Vice Chair, Life Story Network and Chair, Liverpool Dementia Action Alliance

Rachel Thompson

Professional and Practice Development Lead for Admiral Nursing, Dementia UK

Kim Grosvenor

Dementia Transformation Lead, High Weald Lewes Havens Clinical Commissioning Group

Dr. Federica Pascale

Research Associate, Loughborough University

Efthimia Pantzartzis

Research Associate, Loughborough University

Supporters

Supporters

We would like to thank the following organisations who supported this conference. If you'd like to find out how you could support one of our events please email us or call 020 7307 2584.

Social Care Insitute for Excellence (SCIE)

Dementia Action Alliance

The DAA brings together organisations to transform the lives of people with dementia and their carers. At a national level the DAA has begun to shape policy and attitudes.  Locally they galvanise action by coordinating and supporting Local Dementia Action Alliances.

Join dementia research

Join dementia research is a new service developed by National Institute of Health Research, along with Alzheimer’s Research UK and Alzheimer’s Society, which makes it easier for people to register their interest in participating in dementia research.

Young Dementia UK

Alzheimer's Research UK

Alzheimer’s Research UK is the UK’s leading dementia research charity funding over £22m of research into the causes, diagnosis, prevention and treatment of the diseases that cause dementia.

pharmaphorum

pharmaphorum drives innovation within the pharmaceutical industry, by bringing healthcare together through a suite of media services that help produce and disseminate thought leadership, combined with an online platform for communicating messages to a global audience.

The Gold Standards Framework

The National Gold Standards Framework (GSF) Centre in End of Life Care is the national training and coordinating centre for all GSF programmes, enabling generalist frontline staff to provide a gold standard of care for people nearing the end of life.

Care England

Care England is the leading representative body for independent care services in England. Working on behalf of small, medium and large providers, Care England speaks with a single unified voice for both members and the whole care sector.

The National Care Forum

The National Care Forum supports organisations providing care and support services throughout the UK. NCF members are not-for-profit organisations providing quality care and support services.

The National Council for Palliative Care

Our vision is that everyone who has palliative care needs or is approaching the end of life, dying or bereaved should receive the high quality care and support that they need and in the place they need it.

CHAIN

Dementia UK

Dementia UK provides Admiral Nurses, specialist dementia nurses who provide expert practical and emotional support families living with dementia. We also run a helpline staffed exclusively by Admiral Nurses.

Presentations

Session one: Opening plenary

Professor Alistair Burns: Towards a New National Strategy - Ambitions for Dementia Services Going Forward

Frank Arrojo and Jean Tottie: The new Carers Involvement Network for carers of people with dementia

Jeremy Hughes: Opportunity for change - actions to lead improvements

Andrea Sutcliffe: Cracks in the pathway - findings of the Review into the quality of care people living with dementia receive as they moved between care homes and acute hospitals

Session two: Breakouts

Breakout A: Dementia Diagnosis

Sunil Gupta: The top ten reasons to make a timely diagnosis of dementia

Sube Banerjee: Dementia diagnosis- the role of memory services

Breakout B: Delivering high quality services in care settings

Peter McCann: Dementia screening - specialised multi-disciplinary support

Professor George Tadros: Impact of an integrated rapid response psychiatric liaison team - looking at the RAID model

Dr Chooi Lee and Jan Ives: Delivering improvements through involved and supported carers

Breakout C: Implementing care networks

Chloë Hood: Looking at the key findings of the National Audit of Dementia

Dr Elizabeth Gill, Dr Emma Costello and Kim Grosvenor: The Dementia 'Golden Ticket' - an emerging new model of care

Ruth Eley: Your community matters

Session three: Breakouts

Breakout A: Dementia friendly communities

Cathy Henwood: Building a dementia friendly Bradford – one community at a time

Kimberly Radford: Luton as a dementia friendly community – how we are doing it!

Breakout B: Dementia friendly design

Vanessa Saunders and Christopher Knight: The transformation of Beaconsfield East Ward

Breakout C: End of life care

Professor Keri Thomas: Improving End of Life Care for people with dementia

Anita Astle MBE: Improving the quality of care, proactive planning and working with GPs

Hayley Rowson de Vares: Let's talk about death

Session four: Closing plenary

Dawne Garratt: Making a difference in Dementia: nursing vision and strategy

Chris Wilkins and Tony Jameson Allen: Sporting Memories Network – health promotion and peer support through sport