How to involve and co-produce with patients and communities

Implementing the six principles
Date: 
Time: 
8.30am-5.00pm
Venue: 
The King's Fund, London, W1G 0AN
Event type: 
Conference

About

About this event

Developing a new relationship with patients and communities is key to closing the three gaps identified by the NHS Five Year Forward View: health and wellbeing, quality of care and treatment, finance and efficiency.

Bringing together national leaders and local innovations from across the country, this event will demonstrate how you can implement the six principles which set out the basis of good person-centred, community-focused care.

What are the six principles?

The six principles aim to give practical support to services as they deliver the Forward View's vision for a new relationship with patients and communities. They require that:

1. Care and support is person-centred: personalised, coordinated, and empowering

2. Services are created in partnership with citizens and communities

3. Focus is on equality and narrowing inequalities

4. Carers are identified, supported and involved

5. Voluntary, community and social enterprise and housing sectors are involved as key partners and enablers

6. Volunteering and social action are recognised as key enablers.

These principles underpin successful local activity that improves health outcomes and allocation of resources.

What will you learn?

This conference will show you how to:

  • make a case for co-production and co-design
  • change cultures, working with clinicians and managers and other partners to get them to see the value of proper engagement
  • do co-production that embodies equality, diversity, accessibility and reciprocity
  • engage with patients from vulnerable groups
  • use asset-based community development to build on the skills of patients and communities and use them to transform delivery of care.


See the full programme >

The evidence is increasingly clear that better engagement – by which we mean involvement and co-production – is not a nice-to-have, it is core business. There is a growing body of knowledge and practice that demonstrates that engagement is doable and has real impact.

- Six principles for engaging people and communities

Programme

Experts by experience will be joining each session - further speakers to be announced soon.

8.30am: Registration opens, exhibition and refreshments

Breakfast workshop

9.00am: Empowering individuals using the patient activation measure: practical use in the NHS

Dr Helen Gilburt, Fellow, Policy, The King's Fund
Sally Bufton, Hepatitis Clinical Nurse Specialist, Queen Elizabeth Hospital Birmingham
Anu Singh, Director, Patient and Public Participation and Insight, NHS England.

More on this workshop

Two years on from The Kings Fund’s publication, Supporting people to manage their health, this seminar will hear practical examples of the use of patient activation techniques in the NHS, the early results, the lessons learnt and will encourage discussion on next steps so that you can move forward locally.

  • Hear about NHS England’s vision for patient activation within the health care system, a review of the tools and options already in place for providers and why PAM matters
  • Learn practical lessons from a CCG about the use of patient activation and the triple win for providers, healthcare workers and patients
  • Discover how you can use the Patient Activation Measure to understand an individual’s skills and confidence, and using that to tailor a bespoke service suitable for an individual’s needs.

This workshop is being organised by our sponsor, AbbVie.

Session one: The importance of good engagement with patients and communities

10.00am: Welcome and introduction

Helen Gilburt, Senior Fellow, Health Policy, The King’s Fund

10.05am: The impact and value of involvement and co-production

  • Hear from an involvement volunteer how co-production has improved experience and outcomes for patients and service users.

Paul Radin, Involvement Volunteer, Nottinghamshire Healthcare NHS Foundation Trust

10.20am: Six principles for engaging people and communities: putting them into practice

  • Discover how the six principles for engaging with patients and communities feed into work on new models of care
  • Learn how the six principles can help you drive the radical change envisaged by the Five Year Forward View.

Jeremy Taylor, Chief Executive, National Voices and Chair, People and Communities Board

10.35am: Embedding co-production into the day-to-day working of your organisation

  • Hear about the five values and behaviours that must be present in an organisation to make co-production possible and understand the seven steps to implementation
  • Learn from case study examples about how to apply the co-production approach in practice.

Catherine Wilton, Director, Coalition for Collaborative Care

10.50am: Questions and table discussion

Joined by: Carol Munt, Patient Leader

11.15am: Refreshment break, exhibition and networking

Session two: Making the case for a new relationship with patients and communities

11.45am: Welcome back

Halima Khan, Executive Director of the Health Lab, Nesta

11:50am: Working in partnership to develop a new relationship with patients

  • Hear Sara’s story of how she became a patient partner and the impact of working in partnership.

Sara Turle, Patient Partner, Barking, Havering and Redbridge University Trust

Partner from Barking, Havering and Redbridge University Trust (name tbc)

12.05am: Achieving buy-in from GPs for greater engagement with patients

  • Learn how to achieve buy-in from GPs for greater engagement with patients, carers and the community
  • Find out how to outline the benefits of greater engagement by linking it to key clinical priorities and outcomes
  • Discover how to set up expert groups of patients and carers to co-design approaches with clinicians.

Jane Lodge, Head of Engagement, Brighton and Hove NHS Clinical Commissioning Group

12.25pm: Shifting cultures and challenging power imbalance in NHS trusts

  • Learn how to articulate the business case, value and impact of involving patients and the public to managers and key decision-makers in NHS trusts
  • Find out how to design strategies and pathways for care delivery working with both patients and NHS staff.

Jane McGrath, Director, West London Collaborative

12.45pm: Patient Leadership in the real world: learning from working in partnership with CCGs and patient leaders

  • Learn from the challenges of delivering in partnership with patients, health and the voluntary sector to influence decision-making and commissioning
  • See how to manage expectations, build and maintain resilience and balance competing priorities from different organisations and partners to ensure meaningful collaboration.

David Jones, Head, Involvement and Shared Practice, Diabetes UK

1.05pm: Questions and discussion

1.15pm: Lunch, exhibition and networking

Session three: Breakouts

Choose between any of the following sessions:

A: Engaging with vulnerable patients and communities to improve access and self-advocacy

2.15pm: Welcome back

Robert Johnstone, Board Member, International Alliance of Patients’ Organisations

2.20pm: Working with the voluntary sector and vulnerable groups to improve access

  • Hear how to work with the voluntary sector to better understand the needs of vulnerable groups, including those with sensory impairments, the lesbian, gay, bisexual, and trans community, and people who are homeless
  • Discover how to run focus groups and workshops with the local community to develop a better understanding of the needs of these groups.
  • Learn how to work with people with lived experience to carry out ‘mystery shopping’ checks to assess whether improvements have been made.

Emma Whitby, Chief Executive, Healthwatch Islington
Elizabeth Stimson, Engagement Lead, Islington NHS Clinical Commissioning Group

2.40pm: Working with patients to develop tools and techniques to put them at the centre of their health and care

  • Find out how wikis have been developed for patients with intellectual disabilities and mental health issues in Central and Northwest London NHS Trust to enable patients, families and carers to share information with health care professionals to improve care
  • Learn about the impact of using multimedia with patients as a tool for engagement and self-advocacy.

Professor Andy Minnion MBE, Director, The Rix Centre for Innovation and Learning Disability, University of East London

3.05pm: Questions and discussion

B: Ensuring equality, diversity, accessibility and reciprocity in co-production

2.15pm: Welcome back

Pete Fleischmann, Head of Co-production, Social Care Institute for Excellence

  • Learn from practice examples gathered by the Social Care Institute for Excellence for Co-production week about how to apply the principles of co-production in practice: equality, diversity, accessibility and reciprocity
  • Discover ways to develop a relational approach, building relationships based on trust and confidence, so that patients and service users have both power and responsibility
  • Find out how to work with frontline staff to ensure they can use co-production approaches, with time, resources and flexibility
  • Hear how to use formal or informal methods to foster reciprocity and mutuality so that all partners can feel their contributions are valued.

June Sadd, Peer Researcher, Equalities Trainer and Member of SCIE’s Co-production Steering Group

3.05pm: Questions and discussion

C: Using asset-based community development to engage patients and communities in delivery of care

2.15pm: Welcome back

Mark Doughty, Co-Founder, Centre for Patient Leadership, and Leadership Associate, The King’s Fund

2.20pm: Age Better: Patients at the heart of co-designing services

  • Hear how to work with older people to design and deliver a campaign of community action against social isolation and loneliness
  • Learn how to engage with a community to design the service
  • Discover how to recruit people with lived experience to work alongside members of the public, voluntary and private sector organisations.

Ruby Smith, Head of Personalisation, South Yorkshire Housing Association

2.40pm: Building relationships with users and volunteers

  • Learn how to recruit volunteers with lived experience from amongst your user community
  • Discover how to train volunteers as peer advocates and support them to deliver one-to-one support to their peers, overcoming the practical, personal and systemic barriers which prevent them from addressing their health needs
  • Hear about the impact of this peer-to-peer support in improving access to healthcare for people experiencing homelessness.

Kate Bowgett, Director of Advocacy, Groundswell

3.05pm: Questions and discussion


3.15pm: Refreshment break, exhibition and networking

Session four: Supporting and incentivising good practice in involvement and co-production

3.35pm: Welcome back

Alex Fox, Chief Executive, Shared Lives Plus

3.40pm: Working in partnership with patients to provide consistent solutions for quality improvement

  • Learn how NHS organisations can develop consistent ways to meet the individual needs of patients by using the methodology of Always Events
  • Learn how co-production workshops with health care providers and commissioners and patients and communities are used to identify and develop improvements to patient and family-centred care
  • Hear about examples where always events have been used and the impact on patient experience.

Dr Neil Churchill, Director of Patient Experience, NHS England

4.00pm: Panel session

  • How can we embed the six principles to strategic planning and implementation in health and care, including new care models and STPs?
  • How can we incentivise good practice in both commissioning and delivery?
  • How can we support people to take an active role in managing their own health?
  • How can we make shared decision-making and co-production core to the way the NHS does business?

Mark Doughty, Senior Consultant, The King’s Fund

Pete Fleischmann, Head of Co-production, Social Care Institute for Excellence

Simon Denegri, Chair, INVOLVE

4.40pm: Closing comments

4.45pm: Close of conference

Patient representatives and experts by experience will be joining each session - further speakers to be announced soon.

Speakers

Confirmed speakers

Dr Neil Churchill

Director of Patient Experience, NHS England

Sara Turle

Patient Partner, Barking, Havering and Redbridge University Trust

Anu Singh

Director, Patient and Public Participation and Insight, NHS England

Jeremy Taylor

Chief Executive, National Voices and Chair, People and Communities Board

Mark Doughty

Co-Founder, Centre for Patient Leadership, and Leadership Associate, The King’s Fund

Jane Lodge

Head of Engagement, Brighton and Hove Clinical Commissioning Group

Paul Radin

Involvement Volunteer, Nottinghamshire Healthcare NHS Foundation Trust

Pete Fleischmann

Head of Coproduction, Social Care Institute for Excellence

June Sadd

Peer Researcher, Equalities Trainer and Member of SCIE’s Co-production Steering Group

Ruby Smith

Head of Personalisation, South Yorkshire Housing Association

Carol Munt

Patient Leader

Simon Denegri

Chair, INVOLVE

Jane McGrath

Director, West London Collaborative

Emma Whitby

Chief Executive, Healthwatch Islington

Elizabeth Stimson

Engagement Lead, Islington Clinical Commissioning Group

Professor Andy Minnion MBE

Director, The Rix Centre for Innovation and Learning Disability, University of East London

Sally Bufton

Hepatitis Clinical Nurse Specialist, Queen Elizabeth Hospital Birmingham

Alex Fox

Chief Executive, Shared Lives Plus

Catherine Wilton

Director, Coalition for Collaborative Care

Halima Khan

Executive Director of the Health Lab, Nesta

Robert Johnstone

Board Member, International Alliance of Patients’ Organisations

Kate Bowgett

Director of Advocacy, Groundswell

David Jones

Head, Involvement and Improvement, Diabetes UK

Dr Helen Gilburt

Fellow, Policy, The Kings Fund

Patient representatives and experts by experience will be joining each session - further speakers to be announced soon.

See the full programme >

Exhibition

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For more information, email Michael Spencer or call 020 7307 2482.

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Sponsors

Abbvie

Exhibitors

General Medical council

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We offer a limited number of bursary (free) places for our conferences. These are reserved for patients and carers. To apply for a bursary for this event please email Annie.

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Supporters

Partners and supporters

Thank you

We would like to thank the following organisations who are supporting this event. If you would like information on how you can support our events please email us or call 020 7307 2596.

National Voices

National Voices is the leading coalition of health and care charities in England. We want health and care systems which are person centred, meaning that care is coordinated, people are in control of decisions about their health and everyone has fair access to care and support.