Harry Cayton: Developing patient leaders to drive change

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Featuring:

Harry Cayton

Harry Cayton, Chief Executive of the Professional Standards Authority, spoke at our conference, Patient voice and power in the new NHS.

Harry introduced seven different types of leader and stressed the importance of patient leaders finding these characteristics in themselves to drive change in the NHS.

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#41060 K. Atherton
Copd UK support group

In Copd the need for patient representation allowing patients to have a voice and be listened to is a crucial key to management of their disease, education on management in such diseases with earlier intervention through specialised services can help save the NHS and authorities millions of pounds by delaying earlier disablement in what is one of the most challenging life changing and fatal diseases. Education on smoking prevention and cessation is not good enough, pollution in employment, indoor and outdoors must be a key priority along with nutrition and doctors/respiratory nurses acting sooner in both diagnosis and referrals to those services that can and do add benefits and improved lung function. Time and time again we are seeing newly diagnosed patients who have been given no information about their diagnose nor preventative measures or referrals that can help until they have been forced to medically retire or close to death. It simply must improve....no good having standards that are not being followed nor worth the ink on paper. Further advanced investigations to confirm diagnosis of lung diseases after spirometry must be performed sooner. Having a good medical team and knowledge can go a long way in improving 'Quality of Life' for both patient and their families who are left uneducated on how to help. Many patients are simply told to look on the internet and often not even tested for alpha-1 antitrypsin deficiency - a simple blood test!

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