2013 GSK IMPACT Awards: Huntington's Disease Association

Comments: 4

Based in Liverpool, the Huntington’s Disease Association (HDA) is a national organisation offering help, support and advice to those affected by the disease, including children and young people growing up with Huntington’s Disease in their family.

2013 GSK IMPACT Awards: Huntington's Disease Association

Huntington’s Disease is a hereditary disorder of the central nervous system. Its effect on families can be devastating and cuts across generations.

The Huntington’s Disease Association's network of Regional Care Advisors (RCAs) are all qualified health or social care professionals, and are dedicated to helping people manage their symptoms positively. They are the main point of contact for families, providing a 24-hour telephone service, visiting them in their homes and accompanying them to clinic appointments.

More from the 2013 GSK IMPACT Award winners

You can watch videos from all of our winners using the links to the right.

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Comments

#41659 Suzanne Wieczorek
Hairdresser
Justgiving

Raising money for huntingtons by doing the great Manchester run 10k

#41862 Patrick Smith

When we were struggling to come to terms with the devastating news that our youngest son was terminally ill with JHD the 'Juvenile' form of Huntingtons Disease, the HDA came to our rescue and literally saved our family from falling apart.

With their unprecedented love, help and support we overcame the dark cloud that had descended over us and tearing us apart.

The HDA ensured we got all the support we needed and were entitled to as we had no idea what to do, where to go or who to turn to.

For their invaluable and indefatigable support, we will be forever grateful.

#42133 Anthony McDonald
Roofer
Huntingtons disease

I am raising money for HD by doing a personal challenges which is riding from Manchester to Blackpool.

#406514 Amy Prout
Housekeeper

My 7yr old daughter will be cycling 10 miles in the New Year to raise money for this charity. We r all very excited to get planning ....

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